Consortium: Reproductive Health Outcomes and Preservation Evaluation Collaborative (Reproductive HOPE)
Headquarters: University of Chicago
Consortium Manager: Maya Maric, Maya.Maric@bsd.uchicago.edu

The Reproductive HOPE Collaborative is a group of hospitals and research centers working together to collect detailed, standardized information about fertility preservation and reproductive health from patients across the country. This collaborative builds on previous successful projects and includes more than 20 institutions that will share data on fertility preservation techniques like freezing eggs, sperm, or ovarian and testicular tissue. They also use special electronic tools to make collecting this important data easier and more consistent. By combining data in this way, researchers will be able to learn what works best, leading to better fertility care, guidance, and outcomes for young cancer survivors.

R-HOPE’s Working Groups dive deeper into specific areas of fertility preservation and reproductive health care, including oncology exposure, oocyte/embryo cryopreservation, sperm cryopreservation, uterine injury, ovarian tissue cryopreservation, testicular tissue cryopreservation, and behavioral and psychosocial factors that may impact care and outcomes.

Information for Researchers

Data Dictionary: Coming soon.

Research Contact: If you are looking for a research project or if you have a research project that you are interested in conducting with R-HOPE data, please contact Maya Maric at Maya.Maric@bsd.uchicago.edu.

Data Contributors

Executive Committee

NameAffiliationRole
Leslie AppiahMeharry Medical CollegeCo-Chair
Kelsey BalmelliSeattle Children's HospitalRepresentative from Relevant Discipline
Suzi BirzData for the Common Good, University of ChicagoCIO
Kari BjornardSt. Jude Children's Research HospitalWorking Group Lead
Brooke ChervenEmory UniversityWorking Group Lead
Maggie DwigginsWashington University in St. LouisWorking Group Lead
Rebecca FlycktUniversity Hospitals Fertility CenterMember at Large
Holly HoefgenWashington University in St. LouisMember at Large
Victoria KennerleyUniversity of Colorado Anschutz Medical CampusStatistician
Tyler KetterlSeattle Children's HospitalCo-Chair
James KloskyEmory UniversityMember at Large
Lillian MeachamEmory UniversityRepresentative from Relevant Discipline
Molly MoravekHenry Ford HealthWorking Group Lead
Leena NahataNationwide Children's HospitalMember at Large
Kyle OrwigUniversity of PittsburghWorking Group Lead
Erin RowellLurie Children's HospitalRepresentative from Relevant Discipline
Megan SchererWorth the Wait CharityPatient Advocate
Mike SchererWorth the Wait CharityPatient Advocate
Jim SmithUniversity of California, San FranciscoWorking Group Lead
Amy WinshipMonash UniversityWorking Group Lead

Bolded names indicate Executive Committee co-chairs.

Data Request Oversight Committee (DROC)

Data ContributorDROC Representative
Ann & Robert H. Lurie Children’s Hospital of ChicagoErin Rowell
Children’s Healthcare of Atlanta (CHOA)Lillian Meacham
Children's National HospitalVeronica Gomez-Lobo
Cincinnati Children's Hospital Medical CenterAndrew Strine
Dana-Farber Cancer InstituteLindsay Frazier
Duke UniversityTara Streich-Tilles
Eunice Kennedy Shriver NICHDVeronica Gomez-Lobo
Henry Ford HealthMolly Moravek
Ohio State UniversitySara Meyers
Northwestern UniversityKara Goldman
Riley Hospital for Children at Indiana University HealthAmanda Saraf
Seattle Children's HospitalTyler Ketterl
University Hospitals Cleveland Medical CenterRebecca Flyckt
University of Colorado Anschutz Medical CampusLeslie Appiah
UPMC Magee-Womens Research Institute & FoundationKyle Orwig
University of UtahDoug Fair
Washington University in St. LouisHolly Hoefgen