Cancer: Soft Tissue Sarcoma
Consortium: International Soft Tissue Sarcoma Consortium (INSTRuCT)
Headquarters: University of Chicago
Consortium Manager: Suzi Birz, email@example.com
Researchers created this consortium with the goal of establishing a a soft tissue sarcoma data commons to share and provide access to digital objects, focusing on RMS and NRSTS clinical trials data from the United States and Europe. The INSTRuCT database integrates clinical data from the Children’s Oncology Group (COG), The European Paediatric Soft Tissue Sarcoma Study Group (EpSSG), Cooperative Weichteilsarkom Studiengruppe (CWS) der Gesellschaft für Pädiatrische Onkologie und Hämatologie (GPOH), International Society for Pediatric Oncology (SIOP) Malignant Mesenchymal Tumour (MMT), and the Italian Associazione Italiana di Ematologia e Oncologia Pediatrica (AIEOP) Soft Tissue Sarcoma Committee (STSC). You may self-register for an account to perform cohort discovery on the data in the INSTRuCT data commons.
The INSTRuCT Executive Committee has formed six discipline work groups to advance the consortium’s efforts. These efforts have resulted in the RMS and NRSTS data dictionaries and published consensus papers. The work groups are Imaging, Pathology/Biology, Non-Rhabdomyosarcoma Soft Tissue Sarcoma (NRSTS), Radiation Oncology, Statistics/Informatics, and Surgeons.