Cancer: Soft Tissue Sarcoma
Consortium: International Soft Tissue Sarcoma Consortium (INSTRuCT)
Headquarters: University of Chicago
Consortium Manager: Suzi Birz, sbirz@bsd.uchicago.edu

Researchers from the United States and Europe have created this consortium with the goal of establishing a database containing information from clinical trials on children with rhabdomyosarcoma from around the world and making that clinical data available to investigators for data mining studies. The INSTRuCT database will soon integrate clinical data from the COG, the German BFM and CWS groups, the European Soft Tissue Sarcoma Study Group (EpSSG), the Italian AIEOP-STSC group, and the International Society of Pediatric Oncology (SIOP).

Information for Researchers

Cohort Discovery Tool: Log in to INSTRuCT

Data Dictionaries:
Rhabdomyosarcoma Data Dictionary
NRSTS Data Dictionary

Research Contact: If you are looking for a research project or if you have a research project that you are interested in conducting with INSTRuCT data, please contact Suzi Birz at sbirz@bsd.uchicago.edu.

Data Contributors

Children’s Oncology Group (COG)
European Paediatric Soft Tissue Sarcoma Study Group (EpSSG)
Cooperative Weichteilsarkom Studeingruppe der GPOH (CWS)
Malignant Mesenchymal Tumour Committee

Executive Committee

NameGroupCountry
Doug HawkinsCOGUSA
Yueh-Yun ChiCOGUSA
Dave RodebergCOGUSA
Suzanne WoldenCOGUSA
Ewa KoscielniakCWSGermany
Monika ScheerCWSGermany
Thomas KlingebielCWSGermany
Gianni BisognoEpSSGItaly
Hans MerksEpSSGNetherlands
Veronique Minard-ColinEpSSGFrance
Gian Luca De SalvoEpSSGItaly
Sam VolchenboumPCDCUSA

Bolded names indicate Executive Committee co-chairs.