With C-SHARP, Data for the Common Good is partnering with Momcology, Team Bright Side, and Hyundai Hope on Wheels to better understand the experiences of pediatric cancer survivors and to develop improvements to survivorship care.
C-SHARP consists of two new remote studies aimed at helping researchers understand how young adult survivors currently manage their health data and medical care.
Interview Study: A 45-minute remote interview on your current survivorship health data preferences.
Records Study: Work with the research team to gain access to your medical records from your treatment institution.
Eligibility Information:
You can participate in the Interview Study, the Records Study, or both. Both studies are remote, and each pays a $20 gift card.
Interested in participating? Please check back soon for a link.
If you have any questions, please contact D4CG Research Coordinator Zari Henry at d4cg-recruitment@bsd.uchicago.edu or (773)702-3952.
Samuel Volchenboum, MD, PhD
D4CG Director and Pediatric Oncologist
Ellen Cohen, MPP
D4CG Deputy Director
Carly Kiselycznyk, PhD
D4CG Program Director, Direct-from-Patient Contributed Health Data
Enal Hindi, MS
D4CG Sr. Project Manager
Zari Henry
D4CG Research Coordinator
Kirk Wyatt, MD
D4CG Sr. Clinical Advisor and Pediatric Oncologist
Alex Tate, PhD
Sociologist and Qualitative Research Expert
Kim Buff
Founder & Executive Director, Momcology
Matthew Buff
Momcology
Michelle Roesler
Clinical Research Coordinator, University of Minnesota
Guergana Savova, PhD
Professor and Patricia F. Brennan Chair, Harvard University and Boston Children’s Hospital
