The Pediatric Cancer Data Commons (PCDC) harnesses pediatric, AYA, and adult cancer clinical data from around the world into a single unified platform for research. With hundreds of international collaborators forming more than a dozen disease-specific consortia, we are collecting and harmonizing data from across more than forty countries and almost all types of pediatric cancer, and continue to grow. 

The PCDC Data Portal 

The PCDC Data Portal offers a unified platform where researchers can use our cohort explorer and other analysis tools to explore available data and assess study feasibility. Bringing multiple types of clinical data together in one place, the portal offers new opportunities for cross-disease research and interoperability with other data commons. Line-level data for research may be requested through our project application process. Anyone can create an account and explore the PCDC Data Portal. Video tutorials and other documentation are available here.

PCDC Data Dictionaries

Consistent data standards are the foundation for usable, high-quality data. We work with pediatric cancer experts and the National Cancer Institute to develop consensus-based data dictionaries and map all clinical data in the PCDC to standardized terms. Our data dictionaries are available here.

PCDC Consortia

Our disease-specific alliances and consortia are now collecting and harmonizing data for more than a dozen types of pediatric and AYA cancer and related areas of study.

ALL Data Commons – acute lymphoblastic leukemia
C3P – childhood cancer predisposition
CHIC – liver tumors
FA Data Commons – Fanconi anemia
Global REACH – retinoblastoma
HIBiSCus – bone tumors
INRG – neuroblastoma
INSPiRE – CNS tumors
INSTRuCT – soft tissue sarcoma
INTERACT – acute myeloid leukemia
MaGIC – germ cell tumors
NOBLE – nasopharyngeal carcinoma
NODAL – Hodgkin lymphoma
Reproductive HOPE – oncofertility

Follow the progress of these groups here.

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