PCDC data dictionaries are developed through a consensus-based process and are regularly revised and updated. Some data dictionaries have been formally adopted while others are still in development. Please see the READ ME and/or Background Information tab of each data dictionary for development and version information. This work is licensed under a Creative Commons Attribution-NonCommercial 4.0 International License.

We thank all of our disease collaborators for their knowledge, insights, and dedication to these data dictionaries. If you have any questions, please reach out to Kat Bouzein.

PCDC Data Model

The PCDC data model represents a harmonized consensus data model developed across all participating PCDC disease groups and consortia. It serves as the canonical model from which disease-specific and dataset-specific views are derived.