Cancer: Bone Tumors (Osteosarcoma and Ewing Sarcoma)
Consortium: Harmonization International Bone Sarcoma Consortium (HIBiSCus)
Headquarters: University of Chicago
Consortium Manager: Kat Bouzein, kblumhardt@bsd.uchicago.edu

pink hibiscus flowerThe Harmonization International Bone Sarcoma Consortium (HIBiSCus) was formally established in 2021. The HIBiSCus group includes experts in both osteosarcoma and Ewing sarcoma, as well as data contributions from Children’s Oncology Group (COG), Cooperative Ewing Sarcoma Study Group (CESS), Cooperative Osteosarcoma Study Group (COSS), Euro Ewing Consortium (EEC), French Bone Sarcoma Group (GROUPOS), Grupo America Latina de Oncologia Pediatrica (GALOP), Italian Study Group (ISG), National Cancer Research Institute Sarcoma Clinical Studies Group (NCRI), Scandinavian Sarcoma Group (SSG), and Spanish Sarcoma Group (GEIS). To date, HIBiSCus has identified data from over 7,500 patients with Ewing sarcoma and over 5,000 patients with osteosarcoma to be included in the data commons.

Information for Researchers

Data Dictionaries:
Osteosarcoma Data Dictionary
Ewing Sarcoma Data Dictionary

Project Requests:
Project Proposal Form
Publication Policy

Research Contact: If you are looking for a research project or if you have a research project that you are interested in conducting with HIBiSCus data, please contact Kat Bouzein at kblumhardt@uchicago.edu.

Data Contributors

Executive Committee

NameGroupCountry
Matias de AlbertGEISSpain
Daniel Baumhoer​COSSSwitzerland
Stefan BielackCOSSGermany
Bernadette BrennanNCRIUnited Kingdom
Line ClaudeGROUPOSFrance
Uta DirksenCESSGermany
Franca FagioliISGItaly
Nathalie GasparGROUPOSFrance
Craig GerrandNCRIUnited Kingdom
Stefanie Hecker-NoltingCOSSGermany
Katie JanewayCOGUSA
Mark KrailoCOGUSA
Marie-Cecile Le DeleyGROUPOSFrance
Raimondo PianaISGItaly
Elyssa RubinCOGUSA
Sandra StraussEECUnited Kingdom
Maud ToulmondeGROUPOSFrance
Claudia ValverdeGEISSpain
Gabriela VillanuevaGALOPArgentina
Sam VolchenboumPCDCUSA
Olga ZaikovaSSGNorway

Bolded names indicate Executive Committee co-chairs.