The AYA Research Council (ARC) amplifies the perspective of the adolescent and young adult (AYA) cancer population and provides strategic and operational guidance related to cross-disease AYA science to address the unique research needs of this community.


  • To include representative key stakeholders in advising the PCDC on AYA science
  • To advise on the science of AYA research, ethical considerations, expansion of AYA data in the commons, and other related topics while maintaining the independence of the disease consortia for scientific direction
  • To lead review of AYA project request process for multiple diseases, facilitate relationships with adult cancer groups to add those data to the existing datasets, report AYA studies across groups, and facilitate communication between groups about AYA activities
  • To propose and perform cross-disease AYA research

ARC Co-Chairs

Jennifer McNeer

Jennifer McNeer
United States

Mike Roth

Mike Roth
United States

Dan Stark
United Kingdom

Gabriela Villanueva

Gabriela Villanueva

ARC Members

Todd AlonzoCooperative Group Representative (COG)United States
Carolyn BreinichMember at LargeUnited States
Anne-Sophie DarlingtonMember at LargeUnited Kingdom
Uta DirksenPCDC Consortium Representative (HIBiSCus)Germany
Doug FairPCDC Consortium Representative (Reproductive HOPE)United States
Andrea FerrariPCDC Consortium Representative (INSTRuCT)Italy
Lindsay FrazierPCDC Consortium Representative (MaGIC)United States
Sam FuntPCDC Consortium Representative (MaGIC)United States
Hilary GanMember at LargeUnited States
Tara HendersonMember at LargeUnited States
Olga HussonMember at LargeNetherlands
Tyler KetterlPCDC Consortium Representative (Reproductive HOPE)United States
Suzanne MacFarlandPCDC Consortium Representative (C3P )United States
Martin McCabeMember at LargeUnited Kingdom
Jennifer McNeerMember at LargeUnited States
Megan OthusMember at LargeUnited States
Max PenzerMember at LargeUnited States
Apostolos PourtsidisMember at LargeGreece
Betty RoggenkampMember at LargeUnited States
Mike RothCooperative Group Representative (COG)United States
Mary SammelPCDC Consortium Representative (Reproductive HOPE)United States
Jessica SchultePCDC Consortium Representative (INSPiRE)United States
Lisa SchwartzMember at LargeUnited States
Chelsea SelfMember at LargeUnited States
Dan StarkMember at LargeUnited Kingdom
Sandra StraussPCDC Consortium Representative (HIBiSCus)United Kingdom
Winette van der GraafMember at LargeNetherlands
Gabriela VillanuevaMember at LargeArgentina
Kurt WeissMember at LargeUnited States
AnnaLynn WilliamsMember at LargeUnited States
Aaron YeoPCDC Consortium Representative (INSPiRE)United States

AYA Research Council