Working together with international leaders in pediatric cancers and the National Cancer Institute, the Volchenboum Lab develops and applies uniform clinical data standards and facilitates the collection and linkage of data from many different sources and types. Using technology to address inefficiencies in clinical research operations and data aggregation and analysis, we make sure that patients, physicians, and researchers have the best clinical research tools at their disposal. Our management of two pediatric cancer disease group consortia, INRG and INSTRuCT, established the roots of our comprehensive Pediatric Cancer Data Commons Consortium and facilitated the sustainable growth of our international network of data contributors and researchers.
By working with legal representatives from partner institutions around the world, our team is able to streamline the process of creating international data contributor agreements in order to facilitate the sharing of data across international borders. We harmonize existing clinical research data, make it available to researchers to mine, and lead international efforts to standardize data collection so that we can break down long-standing barriers that have kept clinical data siloed and held back advancements in research on rare diseases. We educate and train the next generation of students and physicians about the role of research informatics in clinical research, and we publish literature about our processes so that others may learn from our work.
We utilize our consortium-based approach to drive a wide spectrum of clinical research. Our aim is to reimagine the clinical data life cycle to create new opportunities to accelerate pediatric cancer research and work toward cures.