Data for the Common Good (D4CG) is dedicated to building communities, platforms, and ecosystems that maximize the potential of data to drive discovery and improve human health. Headquartered at the University of Chicago, our team of experts works with collaborators all over the world to connect and share useful, high-quality data between institutions, groups, and countries to increase opportunities for discovery.
Our flagship project, the Pediatric Cancer Data Commons (PCDC), harnesses pediatric, AYA, and adult cancer clinical data from around the world for more than a dozen cancers and related diagnoses. The PCDC Data Portal provides a unified platform for researchers to explore and access data across multiple types of cancer.
We apply the same infrastructure and approach that power the PCDC to build data commons for other rare and under-studied diagnoses. PREDICT brings together data for monogenic diabetes, the ITM Data Commons connects clinical data with the social, environmental, and behavioral factors that shape human health, and similar work is in progress to support research in penetrating brain injuries, rare epilepsies, and more.
GEARBOx is a decision-support tool for matching patients to relevant clinical trials based on their clinical and genomic profile. First developed for acute myeloid leukemia, GEARBOx now also includes trials for neuroblastoma, germ cell tumors, rhabdomyosarcoma, Ewing sarcoma, and osteosarcoma.
We also build resources for patients, families, and advocates, like the Living Atlas of Rare Epilepsies, an interactive map of the genes, conditions, organizations, and data platforms that make up the rare epilepsy landscape. Through the Cancer Survivorship Health and Records Project (C-SHARP), we are developing patient-mediated pathways for health data, building systems that could support future research while giving cancer survivors easier access to their own data.
With our unique approach to data sharing, which prioritizes relationship-building, data quality, and sustainability, we are proud to work in partnership with researchers, clinicians, and patients to drive new science and improve lives.
Join us in envisioning a world where access to high-quality data is never a barrier to improving human health.
Learn more about the Pediatric Cancer Data Commons.
Register an account and explore the PCDC Data Portal.
Learn more and explore GEARBOx.
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