Find the interview with Sam Volchenboum on page 16.
We didn’t want to do the easy thing, which is just take data and then hire people to standardize and then share it. We wanted to tackle it as a grassroots phenomenon: teach people what standards are, empower them to build a data dictionary that’s validated with international input, and then let people harmonize the data into that standard and, ultimately, use that standard to collect subsequent data.
September 15, 2020
“We are so excited to be building the next-generation platform for matching children with leukemia to innovative clinical trials,” Volchenboum said. “In the process, we will be creating the largest pediatric leukemia data set in the world.”
September 1, 2020
Project: ALL Data Commons
Through a single combined, open platform, the PCDC is making data available to clinicians and researchers everywhere. By harnessing pediatric leukemia data from all over the world, researchers will be able to access the largest collection of data ever available for study.
November 16, 2019
Scroll down to the third video for an interview with Sam Volchenboum.
Ruby’s Dance ‘Til You Drop event provided critical seed money for Dr. Sam Volchenboum’s High Risk High Reward Grant which has gone on to receive funding from the National Institutes of Health (NIH).
October 16, 2019
Project: Center for Cancer Data Harmonization (CCDH)
The experience and skills of the PCDC team, including expertise in data standards, data harmonization and commons interoperability, made UChicago an important partner for the new CCDH.
October 2, 2019
“Everything is incentivized against sharing data right now,” says Dr. Samuel Volchenboum of the University of Chicago. “This new approach makes it imperative to share everything. We’re going to make it easy to do the right thing. … In a few years, if you’re not sharing your data people are going to be asking why.”