June 30, 2022
The PCDC’s partnership with The Leukemia & Lymphoma Society (LLS) was highlighted in an interview with LLS Chief Medical Officer Dr. Gwen Nichols on Fox 32 Chicago. As part of the LLS PedAL Master Clinical Trial, PCDC is working with LLS to build GEARBOx, a clinical trials matching tool, as well as an AML data commons.
March 2021
Find the interview with Sam Volchenboum on page 16.
We didn’t want to do the easy thing, which is just take data and then hire people to standardize and then share it. We wanted to tackle it as a grassroots phenomenon: teach people what standards are, empower them to build a data dictionary that’s validated with international input, and then let people harmonize the data into that standard and, ultimately, use that standard to collect subsequent data.
September 15, 2020
Project: PedAL
“We are so excited to be building the next-generation platform for matching children with leukemia to innovative clinical trials,” Volchenboum said. “In the process, we will be creating the largest pediatric leukemia data set in the world.”
September 1, 2020
Project: ALL Data Commons
Through a single combined, open platform, the PCDC is making data available to clinicians and researchers everywhere. By harnessing pediatric leukemia data from all over the world, researchers will be able to access the largest collection of data ever available for study.
November 16, 2019
Project: INSTRuCT
Scroll down to the third video for an interview with Sam Volchenboum.
Ruby’s Dance ‘Til You Drop event provided critical seed money for Dr. Sam Volchenboum’s High Risk High Reward Grant which has gone on to receive funding from the National Institutes of Health (NIH).
October 16, 2019
Project: Center for Cancer Data Harmonization (CCDH)
The experience and skills of the PCDC team, including expertise in data standards, data harmonization and commons interoperability, made UChicago an important partner for the new CCDH.
October 2, 2019
Project: PedAL
“Everything is incentivized against sharing data right now,” says Dr. Samuel Volchenboum of the University of Chicago. “This new approach makes it imperative to share everything. We’re going to make it easy to do the right thing. … In a few years, if you’re not sharing your data people are going to be asking why.”