Lived Experience Advisory Panel

The Lived Experience Advisory Panel (LEAP), composed of cancer patient advocates, provides strategic and operational guidance for the Pediatric Cancer Data Commons.

Purpose:

To offer insights on initiatives of the Pediatric Cancer Data Commons from the perspective of those with lived experiences with pediatric and AYA cancers.
To represent patient populations whose data are or may be included in the PCDC and to safeguard patient agency.
To amplify the voices of patients and patient advocates within the work of the Pediatric Cancer Data Commons.

LEAP Members

Name	PCDC Involvement	Country
Sarah Bartosz	Parent and patient advocate	United States
Kim Buff	Parent advocate	United States
Evan Connelly	Patient advocate	United States
Parag Das	Patient advocate, pediatric oncologist	India
Sloane Dyer	Patient advocate	United States
Mindy Dykes	Parent advocate	United States
Mariah Forster Olson	Patient advocate	United States
Parker Moss	Parent advocate, EAB member	United States
Max Penzer	Patient advocate, ARC member	United States
Carlos Sandi	Parent advocate, EAB member	United States
Johnny Schroepfer	Parent advocate	United States
Greg Simon	Parent and patient advocate, EAB member	United States
Eshan Vishwakarma	Patient advocate	United States
Michaela Willi	Patient advocate, SAC member	Austria