We are grateful to share that Data for the Common Good’s work with the R-HOPE (Reproductive Health Outcomes and Preservation Evaluation) Collaborative will be supported by a grant from Rally Foundation for Childhood Cancer Research.

For children and young adults diagnosed with cancer, treatment can come with lasting consequences, including the loss of the ability to have children in the future. Yet too often, patients and families must make time-sensitive decisions about fertility preservation without access to robust data on what actually works, who is being served, and what outcomes to expect.

The R-HOPE Collaborative, a consortium of more than 20 pediatric and AYA cancer centers, is working to change that. As part of D4CG’s Pediatric Cancer Data Commons, R-HOPE will harmonize fertility preservation data across institutions, linking it to cancer diagnosis and treatment information in a way that simply isn’t possible at any single site. With harmonized data, researchers will be able to ask and answer questions that no single institution could tackle alone: Which patient groups are receiving fertility preservation counseling and care, and which are being underserved? Which fertility preservation approaches succeed, and for which patients? And how often are preserved tissue or gametes successfully used to build a family?

This grant, awarded in the Survivorship / Quality of Life / Psychosocial category, reflects exactly the kind of work we believe deserves more attention and resources. Survival is the first goal, but children and young adults with cancer deserve more than survival — they deserve a full life, including reproductive health and the ability to build a family on their own terms.